Today was a very good day! We met with K’s neurologist to discuss the outcome of his MRI and lab work, and to see how we proceed to manage his seizures. What we found was that the seizures are not being caused by any physical structures, like a tumor, and are therefore very likely to be managed with medication.

In our discussions with the neurologist it became very clear that despite our best efforts at trying to measure the frequency and duration of his episodes, it is very difficult to distinguish them from “daydreaming”, especially if the duration is quite short. After a lot of questions we decided we would try him on the medication for a couple of months and see if we notice any improvement in his episodes and in his ability to learn. We are going to rely heavily on his preschool team here as they do a great job of keeping track of his seizure frequency and communicating with us what is going on with K at preschool. Currently it is hard to know if his seizures are having any impact on his ability to learn and progress, though if what we have been seeing over the last couple of months is any indication it is fairly safe to say they are not holding him back too much.

As we continue to work on getting his supplement schedule worked out and his deficiencies remedied it will interesting to see if they may have been contributing, or causal, factors to his seizure activity. I have read in this article as well as here that dietary insufficiencies can be causal/mitigating factors in seizures. Now the only problem will be trying to discern which treatment may be causing the desired effect.

K’s bloodwork all looked good too, which is encouraging. Many of the tests are not exactly similar to ones we had done in March but we are able to make some comparisons and to deduce that some of our nutritional treatments are starting to work. That is reassuring given the number of supplements we try to get him to take in a day. I’m sure that will be the subject of another post as we are having his test results and supplement schedule reviewed and I am curious to calculate how much we currently are spending on supplements. I will likely post his schedule and monthly cost breakdown should anyone find this information useful or of interest as they look into this form of treatment.

Related posts:

1. Anti-seizure Meds: An update We have had K on his anti-seizure medication now for just over 4 months and so I thought I should update the original post on...
2. MRI today Today was the big day, the day we have waited 9 months for. The purpose for the MR was to rule out any underlying pathology...
3. Anti-seizure Medication I have posted before about K’s seizures and what we have been through to rule out some of the potential causes of this aberrant brain...
4. Brief Snapshot – The beginning When it was time for K to start preschool, and in an attempt to maximize K’s experience and minimize the stress for all concerned when...
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