The audio clip can be found here.

I’m not quite sure how it arrived but a new study on the use of HBOT to ameliorate some of the symptoms of autism arrived in our email inbox. I have read some previous papers on the use of HBOT in treatment for asd, however this uses a more robust experimental design

In reading it I found some things of interest as they relate to K:

• K’s C-reactive protein levels have been high in past lab work that we have had done.  If this is an indicator of inflammation this is supposed to be alleviated by HBOT.
• This protocol does not appear to increase oxidative stess which past lab results have also indicated in K.
• Does his seizure disorder (absence seizures) prevent him from having this sort of treatment if we were interested?

I have attached a copy of the study and it, along with other studies on HBOT (and other topics), can be found in our documents repository.  You have 2 options;  the fancy interface or something a little less flashy.

HBOT_Trial_for_ASD.pdf

What are other’s experiences with HBOT?  I know we have facilities in our area, but am not sure if others have used them and what their impressions/results were.  Comments?

Did anything really surprise or shock you in your research?

“Two things were shocking. We exposed ourselves to all kinds of daily products and measured our blood before, during and after that exposure. After doing those experiments, we found elevated levels of the chemicals in our blood. So, for example, I’ve been doing mercury research for about ten years but I’d never actually consciously sat down, eaten a bunch of tuna and measured my levels. I found that my mercury levels almost tripled in a few days, just by consuming several tuna meals consecutively.”

As anyone involved with autism in some capacity is painfully aware the discussion of mercury as an underlying causal agent in some ASD’s is heated and everpresent.  It is usually in regard to vaccinations, but the recent change in position of many of the most vocal autism groups (Green our vaccines campaign) has moved, to some extent, away from that line of causality.  Never the less, I find it incredibly interesting what the author found regarding his mercury exposure from eating tuna.  I also remember reading a review of a scientific paper that showedd a correlation (yes, I know what that means and does not mean) between autism rates and environmental mercury levels in Texas.

For me this just confirms that anyone that dismisses the idea that some ASD’s can be manifestations of environmental exposure to toxins is naive or has their “head in the sand”.  This book, which I might consider trying to read, sounds like it may provide some rudimentary, anecdotal data on how exposure to everyday items can have a profound impact on our internal environment. Now consider the impact for pregnant mothers and unborn babies as they develop.

Perhaps there is something to the “detox” aspect of alternative autism treatments.  At best it is helping and at worst it is unlikely to be doing any harm and is just making your bank account lighter.  I don’t think I would go so far as to support full chemical chelation as a good option for all ASD’s, but it is undoubtedly appropriate in some cases and should be considered as option for some.  Would we do this with K?  Not likely, not without some good compelling evidence from medical tests that it was warranted.

Anyone have any thoughts on the subject?  Please let us know what you think.

I have posted before on the subject, and my position has not changed.  Getting K on a GFCF diet was one of the 2 best things we did for him (the other was starting his anti-seizure medication).  The change was quite profound and that is why we tell others our experience.  We do not try to indicate that they too can/will see such improvements, but that this is what has worked for K.  In many cases we have had other people tell us that the diet change has had significant, positive impacts on their children too.

In reading the research it is important to consider that the researchers are trying to answer a very precise, limited question and inferences and extensions beyond that question should be made carefully.  I did not read the full articles, just the above reviews, but in many cases the researchers do not comment on any changes, if any, that the participants had regarding their behaviours or autistic traits.  These points are outside the scope of the question being asked and therefore are not deemed relevant to the discussion.  For parents, these are the most relevant points and the underlying mechanism is secondary and this is likely one of the main reasons why average parents rely on anecdotal evidence over scientific research.  I’m afraid that on this particular topic I’m with the average parent.  If we were to follow the research K may not have been able to make such significant improvements over the last 3 years.  This is of course an unanswerable question as we don’t have a time machine to turn back the clock and try it all over again, but we are pretty secure in our supposition.

It is interesting to me that despite the bulk of the research in this area indicating that the GFCF diet has no impact on autistic symptoms and the leaky-gut hypothesis is flawed (in the studies I have seen to date) yet it is a very widely talked about and tried “treatment”. Our old documents repository tracked the number of times articles were downloaded and this was the most downloaded by a margin of 3.5:1 over the next most active article.  Obviously parents aren’t reading the research or they don’t believe it and, like us, decided to try it anyway because it is so frequently discussed with many good results- anecdotally of course.

Some final thoughts. “The diet” can be difficult at first and is definitely more expensive, but once a routine is established and you become familiar with what products are “safe” it is not hard to manage and has become second nature for us.  My last point is just to ensure that you are meeting your child’s nutritional requirements.  We worked with a dietician to ensure we were giving K everything he needed to thrive and that the GFCF diet was not going to have a detrimental impact on his health and development.