Today was a very good day! We met with K’s neurologist to discuss the outcome of his MRI and lab work, and to see how we proceed to manage his seizures. What we found was that the seizures are not being caused by any physical structures, like a tumor, and are therefore very likely to be managed with medication.

In our discussions with the neurologist it became very clear that despite our best efforts at trying to measure the frequency and duration of his episodes, it is very difficult to distinguish them from “daydreaming”, especially if the duration is quite short. Continue reading →

Today was the big day, the day we have waited 9 months for. The purpose for the MR was to rule out any underlying pathology that may be causing K’s seizures (he has partial, or absence, seizures), and though we know the risks of finding anything are low we are both pretty nervous about the outcome. So concerned in fact that we contacted private MR clinics in 3 provinces to see if we could get it done sooner. Continue reading →